Language / Country:
Sites similar to Fabryregistry.Com
Fabry Disease Registry
Description: Information about an ongoing observational database that tracks the natural history and clinical outcomes of patients with this disease.
Popular Searches: fabryregistry
Site rating:
3.0 / 5.0, reviewed by Sites Like Search
Language: English
Site topics: conditions
Pulsus Group Inc, the medical peer review publisher, publishes the work of medical researchers in a manner that exemplifies the highest standards in research ...
Site rating:
3.0 / 5.0, Language: English
Learn about Fabry disease, an inherited disorder caused by deficiency of the alpha-galactosidase A enzyme, and Fabrazyme enzyme replacement therapy.
Site rating:
3.0 / 5.0, Language: English
Provides information and support for people with Fabry disease, their caregivers and families, and their health care providers.
Site rating:
3.0 / 5.0, Language: English
Information about the group and this disease. Join the group free of charge and receive a newsletter.
Site rating:
3.0 / 5.0, Language: English
Dedicated to raising awareness of the genetic disorder known as MCAD deficiency and the importance of early detection.
Site rating:
3.0 / 5.0, Language: English
The National Niemann-Pick Disease Foundation supports and promotes research to find treatments and a cure for all types of Niemann-Pick Disease, and we provide ...
Site rating:
3.0 / 5.0, Language: English
The mission of NINDS is to reduce the burden of neurological disease - a burden borne by every age group, by every segment of society, by people all over the world.
Site rating:
3.0 / 5.0, Language: English
The Ara Parseghian Medical Research Foundation's goal is to find a cure for the devastating Niemann-Pick Type C disease.
Site rating:
3.0 / 5.0, Language: English