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- bensdream
- curekirby
- cystinosis.org
- alifeforelisa
- frankiepants

Jonah's Just Begun - Home

Description: Jonah's Just Begun supports research for Sanfilippo Syndrome (MPS III), a rare genetic disease.Jonah Weishaar

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Language: English

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Ben's Dream - The Sanfilippo Research Foundation

Information about a foundation dedicated to increasing awareness of Sanfilippo Syndrome and raising funds to support research aimed at finding a cure. Includes a ...

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Children's Medical Research Foundation

Funds medical research to find a cure for Sanfilippo Syndrome and other neuro-genetic disorders. News and links to summaries of research that has been supported by ...

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Cystinosis Foundation UK

The Cystinosis Foundation UK is a charity concerned with promoting awareness of Cystinosis and supporting both families and medical research within the United ...

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A life For Elisa

Canadian based charitable group founded by the parents of Elisa Linton.

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frankiepants.com

Personal site about a child with this disorder. Provides details about the condition.

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Propionic Acidemia Foundation Home Page

The PAF is an organization that funds academic and medical research leading to better treatments and a cure of propionic acidemia, an inborn error of metabolism.

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