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Sites similar to Tarynsworld.Org
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Description: Nonprofit organization whose mission is to advocate for families and patients affected by one of the glycoprotein storage diseases. Includes information, newsletter, personal stories and support.
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Site rating:
3.0 / 5.0, reviewed by Sites Like Search
Language: English
Information, support and advocacy for families affected by Lysosomal Storage diseases, a group of rare genetic diseases.
Site rating:
3.0 / 5.0, Language: English
UK-based organisation that aims to increase the public/government profile of genetic conditions. The AIS Support Group (UK) is affiliated to GIG.
Site rating:
3.0 / 5.0, Language: English
Welcome to the home page of the Hereditary Disease Foundation, a non-profit, basic science organization dedicated to the cure of genetic disease. 100% of all ...
Site rating:
3.0 / 5.0, Language: English
Informs and support those affected, directly or indirectly by a mucopolysaccharide or related disease. Offers information regarding each disease, a discussion ...
Site rating:
3.0 / 5.0, Language: English
Hereditary Hemorrhagic Telangiectasia – Osler-Weber-Rendu
Site rating:
3.0 / 5.0, Language: English
Dana's Angels Research Trust Working To a Cure for Niemann-Pick Type C
Site rating:
3.0 / 5.0, Language: English
Canadian Gene Cure Foundation: human genetics, human genetics disorders, genetic transmitted diseases, down syndrome, human genetic disorders, human genetics ...
Site rating:
3.0 / 5.0, Language: English
Provides several factsheets and a newsletter.
Site rating:
3.0 / 5.0, Language: English